VAIDS

Sunday, June 1, 2014

A Point of View: Happiness and disability

Surveys reveal that people with disabilities consistently report a good quality of life, says Tom Shakespeare. So why is it often assumed they are unhappy?

Have you ever thought to yourself: "I'd rather be dead than disabled?" It's not an unusual reflection. Disability, in everyday thought, is associated with failure, with dependency and with not being able to do things. We feel sorry for disabled people, because we imagine it must be miserable to be disabled.

But in fact we're wrong. It's sometimes called the "disability paradox". Surveys reveal people with disabilities consistently report a quality of life as good as, or sometimes even better than, that of non-disabled people. 

Impairment usually makes little difference to quality of life. Research shows, for example, that overall levels of life satisfaction for people with spinal cord injury are not affected by their physical ability.
Woman in wheelchair on beachEven the clinical facts of whether their spinal lesion is high or low, complete or incomplete - all aspects that affect functioning - don't seem to make much difference. Human flourishing is possible even if you lack a major sense, like sight, or you can't walk, or you're totally physically dependent on others.
Omar Sy and Francois Cluzet in a scene from the film Les Intouchables, 2011
So what's going on?
If you think about it for a moment, you realise that people born with an impairment have nothing to which they can compare their current existence. Someone lacking hearing or sight has never experienced music or birdsong, visual art or a sublime landscape. Someone with an intellectual disability may not consider themselves different at all. Someone like me, born with restricted growth, has always been that way. Even if life is sometimes hard, we are used to being the way we are. 

For people who become disabled, there's a typical trajectory. I can say this from personal experience, having become paralysed in 2008. Immediately after the onset of injury or disease, one can feel profoundly depressed, and even contemplate suicide. Yet after a period of time, people adapt to their new situation, re-evaluate their attitude to the disability, and start making the most of it. Sometimes, they are driven to greater achievements than before. Remember those amazing Paralympic athletes…

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