Surveys reveal that
people with disabilities consistently report a good quality of life,
says Tom Shakespeare. So why is it often assumed they are unhappy?
Have you ever thought to yourself: "I'd rather be dead than
disabled?" It's not an unusual reflection. Disability, in everyday
thought, is associated with failure, with dependency and with not being
able to do things. We feel sorry for disabled people, because we imagine
it must be miserable to be disabled.
But in fact we're wrong. It's sometimes called the
"disability paradox". Surveys reveal people with disabilities
consistently report a quality of life as good as, or sometimes even
better than, that of non-disabled people.
Impairment usually makes little difference to quality of life. Research shows,
for example, that overall levels of life satisfaction for people with
spinal cord injury are not affected by their physical ability.
Even the clinical facts of whether their spinal lesion is
high or low, complete or incomplete - all aspects that affect
functioning - don't seem to make much difference. Human flourishing is
possible even if you lack a major sense, like sight, or you can't walk,
or you're totally physically dependent on others.
So what's going on?
If you think about it for a moment, you realise that people
born with an impairment have nothing to which they can compare their
current existence. Someone lacking hearing or sight has never
experienced music or birdsong, visual art or a sublime landscape.
Someone with an intellectual disability may not consider themselves
different at all. Someone like me, born with restricted growth, has
always been that way. Even if life is sometimes hard, we are used to
being the way we are.
For people who become disabled, there's a typical trajectory.
I can say this from personal experience, having become paralysed in
2008. Immediately after the onset of injury or disease, one can feel
profoundly depressed, and even contemplate suicide. Yet after a period
of time, people adapt to their new situation, re-evaluate their attitude
to the disability, and start making the most of it. Sometimes, they are
driven to greater achievements than before. Remember those amazing
Paralympic athletes…
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