It was potluck night recently for a group of men in Los Angeles who gathered to fight a persistent enemy: Stigma surrounding HIV.
"People use the word 'clean' to represent 'negative,' and it happens all the time," said Orren Plaut.
There was a resounding, collective
"Ugh!" from the rest of the group, seated in a circle on patio
furniture and floor pillows. "It's something we of positive status
hate," said Plaut.
"It's like, yes I shower," another member added with an eye roll.
Plaut is the executive director of
The Thrive Tribe Foundation, an LA-based social network for gay and
bisexual men working to eliminate the negative stereotypes that surround
HIV through a combination of education, community support and increased
access to health care. Most of the men gathered here are in their 20s
and 30s and are too young to remember first-hand the height of the HIV
and AIDS epidemic in the United States. Medical advancements made it
possible for the virus to become a manageable chronic disease, but
haven't necessarily wiped away the stigma.
In recent years, the number of new
HIV diagnoses has dropped dramatically, down 19% from 2005 to 2014,
according to the Centers for Disease Control and Prevention.
Antiretroviral therapy (ART) has
been a game-changer when it comes to reducing the risk of transmitting
the virus. Those on the treatment who are able to achieve viral
suppression (a very low level of the virus in the blood) or an
undetectable viral status not only reduce but, according to multiple
different studies, completely eliminate the risk of transmitting to a
sexual partner.
Meanwhile, Pre-exposure
prophylaxis, more commonly known as PrEP, is a once-a-day pill that when
taken consistently, can reduce the risk of HIV infection by 92%,
according to the CDC.
In spite of this progress, for a
younger generation of people living with HIV, stigma still plays a very
powerful role in their life, particularly when it comes to disclosing
their status to their sex and dating partners.
"It never feels good to get
rejected," said Chris Villalobos, Associate Director of The Thrive Tribe
Foundation. He's 29, single, and was diagnosed with HIV at age 24.
"I don't want a conversation to
start with 'How'd you get infected?' and, 'Were you dating a guy? Or
were you just [having casual sex]'?'"
His HIV status has become a
natural filter for him in the dating world. "That person wasn't meant to
be in my life," he says of those who respond with hostility or cruelty,
"because I'm a f----ing fantastic person, and they are missing out at
this point."
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